#120 ACP Day 2025: James and Clare share how you can be involved

27.01.25

#120 ACP Day 2025: James and Clare share how you can be involved

In this episode it is my pleasure to catch up with James Norris. James is the founder of MyWishes and the Digital Legacy Association.  He is also the Digital Research Fellow at Michael Sobell Hospice (London). 

It’s a chance for us to reflect on the 2024 Advance Care Planning Conference and to share news of the UK's second National Day dedicated to Advance and Future Care Planning. Listen to hear how you can be involved, through attending in person, live streaming or making a pledge.There’s a wealth of resource on the Advance Care PLan  website too and space for you to share your own Advance Care Planning event. Join us to make this year bigger and better!


Key messages

  • We reflect on the origins of the ACP Day Conference, how it started and what we did

  • James explains what is now available on the ACP Day 2025  website

  • We are encouraging you all to share event, let us know what’s happening in your area

  • Information from across the nations is available on the ACP

  • We discuss the concepts of planning ahead, acknowledging the myriad of different words used

  • We identify the themes and great speakers for the ACP Conference 2025 

  • James pledges to do his Lasting Power of Attorney by ACP Day 2025 and to help me do my Digital Legacy

Resource

Podcasts available featuring 2025 ACP Day guests


Bio

James is the founder of MyWishes and the Digital Legacy Association.  He also holds the post as the Digital Research Fellow at Michael Sobell Hospice (London) 

Over the last 13 years James has developed and explored the use of technology to help improve end of life communication, planning and care.

In 2015 he launched the Digital Legacy Association CIC at Hospice UK’s annual conference to support professionals and the general public in areas relating to digital assets planning and digital legacy. The Digital Legacy Association argues that ‘planning for death digitally should form a holistic approach to advance care planning’.

MyWishes takes both a public health approach and a digital first approach to advance care planning. It educates and empowers society to document their future health and wider wishes. Its content, structure and design has been developed to help introduce care planning to society at an early stage and normalise this behaviour by incorporating it alongside other better known tasks (will writing, funeral planning, bucket lists etc). MyWishes only works with the NHS, local councils and the charity sector. It is free for all to use. MyWishes has been ‘hyperlocalised’ to help support different regions’ unique, health ecosystems. The Wellbeing Hub for example, is only available for MyWishes users who live in the Hillingdon Borough of London. 

James continues to consult various governmental and non-governmental organisations across the globe in areas relating to death and the internet. He provides thought leadership in areas relating to death, bereavement, technology and the internet on TV, online, print and in scientific journals. Appearances and publications range from BBC Breakfast and the BBC’s Morning Live to the New Scientist and Vice magazine. James has also held the post as the Design Research Fellow at the Velindre Cancer Centre (Cardiff) for the last six years.


 

What one thing will you do?

It would be great to share what resonated with you from this episode, what is the one thing you will do differently? Head to Twitter, Facebook or LinkedIn to continue these important conversations.

Thanks to all my guests for working with me to share their knowledge, experience and stories about Advance Care Planning. I hope you enjoyed listening and have insights to take away; I love hearing your reflections on the series and look forward to reviews on Spotify where you can also subscribe to the series.

Clare

Important Conversations about Important Conversations.